The Birth Registry is the first national clinical data registry* developed by the American College of Obstetricians and Gynecologists (ACOG) that is centered around labor and delivery outcomes in the United States.
Its primary focus is capturing clinical data entered into the electronic health record (EHR) by providers. Through clinical performance measures and data quality metrics, The Birth Registry provides a unique opportunity for providers to better understand the overall quality of the maternity care provided within their institution.
ACOG leverages the collected Birth Registry data to:
- Benchmark quality outcomes for participants
- Understand the drivers of labor and delivery outcomes
- Develop and implement educational programs on maternity care
- Gain insight for future ACOG initiatives
- Inform best practice guidelines
*The Birth Registry is not a QCDR.
Why Was The Birth Registry Developed?
The United States has one of the worst rates of maternal mortality among developed nations, yet there is currently no national system for reporting maternal complications. The Birth Registry serves as a method for determining local and national benchmarks, sharing performance on quality metrics with participating institutions, and identifying opportunities for care improvement initiatives in order to improve care for women in labor and delivery.
Our Data Advisory Group
The Birth Registry Data Advisory Group is a group of multidisciplinary women’s health professionals that has been convened to advise on the development of meaningful performance metrics that reflect the quality of maternal care women receive and related outcomes. Click through the slides below to get to know the group members!
Christian Macedonia, M.D.
Dr. Christian Macedonia, M.D. is the Managing Partner and CEO of Lancaster Maternal Fetal Medicine based in Lancaster Pennsylvania. Prior to working in Lancaster, he served for three decades in the US Government as a physician leader, scientist, and policy expert. He is a pioneer in telemedicine and in advanced ultrasound technology development as well as a leader in government sponsored biomedical research. This includes work on the White House Sponsored BRAIN Project. Dr. Macedonia is an avid explorer and has carried out scientific expeditions with the Explorers Club on Mt Everest, the Ecuadorian Amazon, and completed a marine archeology submersible dive to the RMS Titanic. After leaving his full-time faculty position at Johns Hopkins School of Medicine he remains a volunteer Associate Professor in the Department of Gynecology and Obstetrics. He is a medical graduate of the Uniformed Services University School of Medicine in Bethesda Maryland and completed a combined MFM fellowship (with a concentration in bioinformatics) at Georgetown University and the National Institutes of Health.
Joia Adele Crear-Perry, MD, FACOG
Founder and President of the National Birth Equity Collaborative, Dr. Crear-Perry recently addressed the United Nations Office of the High Commissioner for Human Rights to urge a human rights framework to improve maternal mortality. Previously, she served as the Executive Director of the Birthing Project, Director of Women’s and Children’s Services at Jefferson Community Healthcare Center and as the Director of Clinical Services for the City of New Orleans Health Department where she was responsible for four facilities that provided health care for the homeless, pediatric, WIC, and gynecologic services within the New Orleans clinical service area.
Dr. Crear-Perry testified before the House Energy and Commerce Committee as the Democratic witness in support of the only Maternal Health Bill signed into law since the new Administration came into office. Dr. Crear-Perry currently serves as a Principal at Health Equity Cypher and on the Board of Trustees for Black Mamas Matter Alliance, Community Catalyst, National Clinical Training Center for Family Planning and the UCSF PTBi.
Dr. Crear-Perry completed her medical degree at Louisiana State University and her residency in Obstetrics and Gynecology at Tulane University’s School of Medicine. She was also recognized as a Fellow of the American College of Obstetrics and Gynecology. She is married to Dr. Andre Perry and has three children: Jade, Carlos, and Robeson.
Cathy Ivory, PhD, RN, BC, RNC-OB
Dr. Cathy Ivory is the Senior Director of Nursing Research at Vanderbilt University Medical Center in Nashville, TN. She is an OB nurse,an informatics nurse and a health services researcher with special interest in using perinatal data to make decisions and to quantify outcomes. Dr. Ivory was the 2014 President of the Association of Women’s Health, Obstetric and Neonatal Nurses (AWHONN).
David C. Lagrew Jr., MD
Dr. Lagrew is a maternal fetal medicine specialist and physician informaticist with a special interest in maternal quality improvement. Dr. Lagrew currently serves as Executive Medical Director of Women’s and Children’s services for Providence St. Joseph-Southern California which includes delivery services doing over 31,000 deliveries per year. He has been charged with developing the individual Ministries Clinical Institutes and systematizing Women’s and Children’s Health. Dr. Lagrew serves as co-chair for the Providence St. Joseph Health system’s focus group on normal and high-risk obstetrics. Dr. Lagrew currently is a member of the Executive Committees of the California Maternal Quality Care Collaborative (CMQCC) and California Maternal Data Center. He co-chairs the CMQCC Hemorrhage and Intended Vaginal Birth Taskforces and co-edited the CMQCC Hemorrhage and Primary Cesarean Section reduction toolkits and helped author the Alliance for Innovation on Maternal Health Bundles for the same topics. He holds triple board certification in Obstetrics/Gynecology, Maternal Fetal Medicine and Clinical Informatics. In addition to these administrative and leadership roles he continues to active in authoring numerous peer reviewed publications and book chapters. He is a clinical professor in the Department of Obstetrics and Gynecology, University of California, Irvine.
Monica R. McLemore PhD, MPH, RN
At the University of California, San Francisco, Monica McLemore is a tenured associate professor in the Family Health Care Nursing Department, an affiliated scientist with Advancing New Standards in Reproductive Health, and a member of the Bixby Center for Global Reproductive Health. She retired from clinical practice as a public health and staff nurse after a 28-year clinical nursing career. Her program of research is focused on understanding reproductive health and justice. She has 49 peer reviewed articles, OpEds and commentaries and her research has been cited in the Huffington Post, Lavender Health, two amicus briefs to the Supreme Court of the United States, and a National Academies of Science, Engineering, and Medicine report. Her work has appeared in publications such as Dame Magazine, Politico, ProPublica/NPR and she made a voice appearance in Terrance Nance’s HBO series Random Acts of Flyness. Her work was published in the 2019 Future of Medicine edition of Scientific American as a data visualization project entitled How To Fix Maternal Mortality: The First Step is to stop blaming women. She is an elected member of the governing council for Sexual and Reproductive Health (SRH) section of the American Public Health Association and is incoming chair-elect of the SRH section. She is the recipient of numerous awards and will be inducted into the American Academy of Nursing in October, 2019.
Shon Rowan, MD
Shon Rowan works as an Obstetrician Gynecologist at West Virginia University where he is an Associate Professor. His practice focuses on infertility as well as robotic surgery. He has served as Program Director as well as the Medical Director for Quality Improvement. He is currently WV Section Vice Chair for ACOG. He lives in Morgantown with his wife Michelle and their 3 children.
Erin Snowden, DHSc, MPH
How much time does it take to be a part of The Birth Registry?
After you complete the interest form, a member of The Birth Registry team will reach out to you within two business days. The complete onboarding process is dependent upon the signing of all required documents by your facility’s leadership and ACOG, and successful integration of your EHR with the registry vendor. This timeline may vary among participating sites.
How much does it cost to enroll in The Birth Registry?
There is currently no cost to enroll or participate in The Birth Registry for the first year. Future fees will be determined based on a scale that considers the number of a facility’s births per year. These fees will take effect in the second year and will be communicated to each facility at the time of enrollment.
Does data have to be manually submitted?
No, The Birth Registry was designed to utilize clinical data entered by providers at the point of care and the data is extracted directly from the EHR without the need for burdensome chart abstraction and double data entry.
How will data pulled from the hospital EHR be used by ACOG?
ACOG is a strong advocate of data privacy and will only use de-identified, aggregate data. We will not analyze, report, or sell patient or provider-identifiable data. Data pulled from the EHR will be used to share impactful quality metrics back to participating sites and ultimately improve maternity care and outcomes.